Wednesday, December 18, 2013

Hello Everybody

I think I'm one of the worst bloggers out there.  Or maybe in a better light I'm the BEST worst blogger out there.  Either way, I DO get around to blog every few months or so.  Oh well, life's crazy.
Love these crazies.

Okay so updates.  I think my last post was about how all of our immediate plans kind of took a turn for the worst as Taylor got really sick again and we were just waiting for medicines, etc.

We waited...
Photo credit goes to Mercedes on this one.
But in the end the medicines didn't work like we had hoped.

To make a long story short, we, meaning Taylor and I and his doctors have decided that surgery is the next and final step.  With as major as it is, it brings us barrels of hope.  Those we know who have had the surgery live normal lives, meaning zero Ulcerative Colitis symptoms.  Which makes sense because you can't really have Ulcerative Colitis if you no longer have a Colon.  There are some cons to having your colon removed, like having more frequent bowel movements for example because you don't have a colon to absorb water.  There are other little complications that can happen but the good far outweighs the bad at this point.  It would have been great if the medicines did work but we had a lot of other worries about Taylor being on all of those heavy meds for the rest of his life.  We feel like the surgery is the surest way for Taylor to be back to normal health again.

We have so many feelings about the surgery including nervousness, anxiousness, not looking forward to the hospital stays and all of the surgery recovery time but overall we feel like Taylor (and our family as a whole) are getting a life back.  We are very excited and very grateful.

On January 2nd Taylor will check into St. Mark's Hospital in SLC to have his colon removed.  The recovery stay at the hospital will be anywhere between 3-5 days.  Hopefully there will be no complications and he can go home by that point.  He will have an Ileostomy bag while his body recovers for 6-8 weeks at which point he will go back in for a second surgery to have things "reconnected."  I'm not going to go into details about the whole process but if anyone is interested in learning more, just google Colectomy and you can learn loads. ;)
A little visual for some extra understanding. :)

After 6-8 more weeks of recovery, and adjusting to life without a large intestine, he will be symptom-free for the first time in many years.

I can't even tell you how absolutely wonderful that sounds.

Now we're just praying, hoping and praying some more that everything will go smoothly in the weeks and months to come.  Again, the whole idea of the surgery is nerve wracking, especially for Taylor, but we are very anxious and excited to get it all done and over with so that we can move forward in life.  We are so grateful.

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Have a super merry Christmas!

Sunday, October 6, 2013

Falltime

It has been six months since my last post, and frankly blogging has not been one of my priorities.  But lately I've been feeling the need to post, mainly for myself.  Life takes crazy turns, to say the least.  Speaking of life in general, General Conference was absolutely wonderful.  Having a young one makes listening sketchy at times but what I did hear was nourishing to the soul.  And I need to place emphasis on Elder Holland's talk.  His words spoke straight to my soul and I desperately needed to hear them.

When we moved to Utah at the beginning of the summer we were filled with excitement and the thrill of feeling like we are finally moving along in life.  Taylor would start the Police Academy in the fall and by next summer he would be ready to be hired as a Police officer and we would be ready to move on ahead with our plans that we have waited for seemingly so long.  His health was great, although there would be a day here or there that his colitis acted up but overall we were positive and confident.

The summer wore on and Taylor's health just wouldn't give him a break.  By the end of the summer his Ulcerative Colitis was beginning to get worse and we were getting more worried with each day that passed, knowing the Police Academy was right around the corner.  September arrived and after Taylor's first day at the Academy he had an appointment with his new Gastroenterologist here in Utah.  They placed him back on the steroid with the hopes that the bleeding (which had begun that same week) and the diarrhea (which had started weeks before) would quickly go away and he would get feeling back to normal.  By the end of the second week of the Academy Taylor was so sick he could hardly get out of bed, except to use the restroom which was about once every hour, or more.  He had lost about 10 pounds in a week and could no longer get himself to go to class.  Up until this point we we hadn't really considered that the Police Academy wouldn't be happening this year.  But our biggest fears were being realized not only because we would have to wait yet another year to set our plans into motion, but Taylor was getting just as sick as he was two years ago, and we hoped that would never happen again.

The doctor scheduled a colonoscopy for Taylor which took place last week.  After the procedure the doctor came in and said without reserve, "Your colitis is horrible." He said they would start Taylor on Remicade IV infusions and in several months if he isn't in remission they will perform a colostomy, as in remove his colon.  Taylor and I have known about this surgery and as terrible as it may sound, especially to those who have never heard of it before, we know a lot of people who have had their colons removed and have had normal lives after.  Meaning they have no more Ulcerative Colitis.  With the options the doctor gave us, we were relieved.  My biggest fear going into the colonoscopy was that the doctors would take Taylor through a rollercoaster of trying different medications with many months of trial and error, waiting for Taylor to get well again.  But the condition of Taylor's colon drove them to decide to jump to the final levels of treatment for the problem.

This past week we've just been waiting for Taylor to start Remicade, which should hopefully be early next week.  We really hope and pray that the Remicade will get him well again, and if it doesn't, there is the surgery.  So now we wait.

I need to start off by saying that our little family is so blessed.  We have been given so much, and in our trials we have found comfort in our love for each other, in our love of our Savior and in His love for us.  Our struggles have brought us closer together as a family and closer to Heavenly Father and his Son.  But in these faith building experiences I also find myself struggling with my faults and feeling so weak.  These past two years have presented some great trials for myself, Taylor and Mercedes.  The decline of my husband's health two years ago followed by many months of recovery, the heartbreaking loss of a pregnancy last fall and the speedy attack on Taylor's health again making him drop out of the academy this year has placed the word PATIENCE right into the center of our souls.  It is a learning curve which I still feel very far from grasping fully.

When I'm trying to fix Taylor something to eat and Mercedes is hanging on me or having a melt down or just needing me I feel my grip on patience slipping.  I put Mercedes in her room to cry out a little tantrum of hers and I'll close the door and walk away, crying myself...feeling so overwhelmed with the burden that has hung over us.

 I don't know if there are specific reasons for why we are having the trials we do but I do know that Heavenly Father wants us to come out of them better people than we were before.

Conference this weekend has been nourishing to the spirit and soul, and has left me with a great deal of comfort, and a lot to think about.  Elder Holland and President Monson gave talks that particularly stood out to me, and as it was for others, I know it was a gift from God sent to comfort me as well.

Included in many of the things said was this quote by Elder Holland.  "Though we may feel like we are a broken vessel...we must remember that vessel is in the hands of the divine potter."

I know that Christ lives.  I know that because he died for us and was resurrected, we get to take part in the resurrection someday where our bodies will be perfected.  I know that life is hard, but I'm grateful for it, because without hard things how could we possibly become like Heavenly Father someday?  I love His gospel and know that it is true.  And I know that with trust in Christ we can be happy, no matter what.






Monday, April 1, 2013

March

So here is my monthly post... LOTS of pictures!

 Mercedes admiring a puddle.  
A beautiful sky.
 Mercedes enjoying a cookie at one of our favorite places to spend time.


 You can't go wrong with Brown Cow chocolate yogurt.  Mmm.

 Pink hat from Charming Charlie's.

 Wearing mommy's glasses.
 Mercedes' outfit of choice on this particular day.
 Ward Easter egg hunt.


So this last weekend we went camping with the fam.  We had a blast and can't wait to do it again (hopefully soon).






















 Several weeks ago I made a cake for my sis-in-law Christina for her birthday.  Let's just say she's a big cheetah print fan.  She was pretty surprised!


 After the party and before bed, this little one had some energy.
 She got some energy out dancing and she seriously had some new moves that were cracking us up.






Then she asked everyone else to get up and dance. How can anyone say no??
(Worried mother expression as Mercedes spins fast)
Love her.

As you know, yesterday was Easter and Mercedes couldn't wait for her Easter basket.

 She was so cute as she was so good about covering her eyes.
 Unable to contain her excitement.


This is what we call her "excited tongue."  She does that when she's really happy.  I love this age!


Taylor and his dad and brothers have picked up golfing and so I had to add a couple of pictures of my cute hubby.
Love him!

Happy April everybody!